Friday, 24 December 2010 10:13

US trip October 2010

During the month of October 2010 I have presented seminars at four different places in the USA.

I started at my Alma Mater, Perkins School for the Blind, In Watertown, Mass. The second seminar took place in Jackson, Mississippi. This was followed by a two day seminar in Lubbock, Texas Tech and finally I was the guest speaker for DBmat, the Texas organization of parents of children with multiple disabilities.

I started my trip with a webcast at Perkins School for the Blind. The interviewer was well prepared for the session and addressed mainly the subjects I dealt with in my latest DVD on the Limbic system (see webshop: Let's talk Limbic).

The web cast can be viewed shortly at the special page at Perkins web site: http://www.perkins.org/search/search.jsp?query=webcast.

Published in Jan's blog
Wednesday, 07 April 2010 18:24

Charge Syndrome

CHARGE Syndrome is a major cause of deafblindness, characterized by many typical symptoms. The name CHARGE is an acronym for the six characteristics that are often present. These are:

  • Coloboma (key hole type opening in iris and retina)
  • Heart defect
  • Atresia of the choanae (blockage of the passages between the nasal cavity and the naso-pharynx)
  • Retarded growth and/or development
  • Genital hypoplasia
  • Ear anomalies/deafness
Published in Jan as Researcher
Sunday, 04 April 2010 22:03

Congenital Rubella Syndrome 2

Fourteen years after the first Australian research project, 17 deafblind children from Project I, as well as 23 from the “deaf only” sample, were reassessed. The purpose of this follow up research was to determine if the tests administered during Project I were still predictive of a child’s learning and behaviour fourteen year later. In other words, how did the deafblind group and the “deaf only” group develop?

The outcome of the study was quite surprising. It was found that a test of learning potential at age 5, using the Hiskey Nebraska Test of Learning Aptitude, was a good predictor of learning achievement during school age.

Published in Jan as Researcher
Friday, 02 April 2010 14:32

Congenital Rubella Syndrome 1

A little bit of history.

My first research project was on deaf and deafblind children who were born with multiple disabilities because their mothers had been infected by the rubella virus during pregnancy. At the time I started my research, I had over ten years experience teaching children who were deafblind due to Congenital Rubella Syndrome (CRS). As a graduate student in special education and clinical psychiatry, I was intrigued by the peculiar behaviour of these children, and their strange ways of learning.

Heather Hewitt, Director of Monnington, an organisation in Melbourne, Victoria (Australia), invited me to cooperate with her team in a research project on "rubella children." The rubella epidemics of the 1960s had left Australia with many victims. I worked with the psychological staff of Monnington to collect data on 81 children, with a mean age of 65.7 months, who were deaf and deafblind due to rubella. Of these 81 children, 63 were "deaf only." 18 had additional visual impairments because of bilateral cataracts. This was the deafblind group.

Published in Jan as Researcher